Just because

Ok....every time I come to the blog I am horrified that the first thing I see is Mason's wounds. So, here's a little post to divert your attention. :) Mason has had a really good couple of days. The respiratory therapists have put him on a different setting on the ventilator to help exercise his lungs....yesterday he stayed on it for 40 min. before his anxiety got the best of him. He was doing really well, but I am sure it's very scary doing most of the breathing on your own after having a breathing tube for 4 weeks. Mason is such a trooper...a champion....capable of more patience and bravery than I'll ever know. I am so proud to call him my son. He is amazing! Of course he has won the hearts of all the hospital staff wherever we go. The nurse told me yesterday that the other nurses were googoo over him. Not surprising :) He is so cooperative and sweet....and cute as can be :) The doctors are weaning the pain meds and the vent settings. He is doing well with that. He seems comfortable and is much more awake. I love the time we have with him. He's enjoying listening to me read to him and watching an occasional movie. He doesn't usually make it through a whole movie, but he tries. Child life has brought in all kinds of fun things for him to look at. For a couple of days he watched a light show on the ceiling. Last night she brought in a ton of new visuals for him...a disco ball, some sort of other light show thing in a tube, etc. Since he has no use of his limbs his entertainment is limited. They have been doing a good job of finding fun things for him....and for me...I am thinking about heading to the massage chair in a bit. (yes, a massage chair just for parents....ahhh!) I am so happy with our choice to come to this hospital (and not because of the massage chair..haha!). They have been amazing. We love the new rheumatologist. I feel like we made the right decision. Until next time.